
SMAshing My Limits
Celebrate every accomplishment — no matter how big or small — with our community and push beyond the limits of spinal muscular atrophy (SMA) every day.
Charlie Z., SMA Patient Advocate, SMA Type 3
Life With SMA
Individuals of all ages are affected by SMA, and each day brings with it new challenges. While no two people are the same, many living with SMA or caring for someone with this disease share similar challenges, including:
Every moment spent overcoming these challenges — and more — are moments worth celebrating

Whether it’s meeting a major milestone, making a new memory, or overcoming one of your previous limitations, your accomplishments can inspire others.
It’s time to celebrate how you SMAsh your limits!

“My journey with SMA helped me find my passion for filmmaking. Being in a wheelchair doesn’t stop me from chasing big dreams or telling powerful stories. Every day, I push past what society expects, challenge stereotypes, and prove that I can tell powerful stories, and inspire change – if not more.”
– Siara M., SMA Patient Advocate, SMA Type 3

“You’ve already won because you’re here today. That’s what I tell myself whenever I lose confidence or feel like I’m falling behind. Just reaching this age with SMA took countless miracles—so every second I’m alive is a privilege. When you’re feeling down or tired of pushing for a better life, remember: you already won.”
— Januel G., SMA Patient Advocate, SMA Type 2
Navigating Your SMA Journey
Explore resources to help you throughout your SMA journey, including tips on how to handle difficult conversations, management options, and access support so you can SMAsh limits.
Downloadable Tools for SMAshing Your Limits
Explaining SMA to others and advocating for yourself can be tough. Our downloadable resources can help you share your experience and give you tips for managing day-to-day obstacles.
Managing Your SMA
Learning how to get support for symptoms ↗ - now and as they evolve - can help empower people living with SMA to overcome obstacles and reach their goals.
Content is not intended to serve as medical advice or to substitute for professional medical consultation.
Physical Therapy | |
Occupational Therapy | |
Assistive Devices | |
Speech Therapy | |
Nutrition | |
Additional Medical Interventions |
Disease-Modifying Therapy Management Approaches
SMA is caused by SMN1 mutations, causing progressive motor neuron loss.2 The SMN1 gene is responsible for producing the survival motor neuron (SMN) protein, which is needed to sustain muscle function.
In most cases, the earlier individuals with SMA receive treatment, the more likely they may see benefits and outcomes.
Learn How to Manage Your Journey
Building a treatment goal that works for you or the individual with SMA you care for is an important part of breaking barriers. Explore additional resources that can give you the information you need to chart your own course with SMA or to help someone you care for navigate their SMA journey.
Content is not intended to serve as medical advice or to substitute for professional medical consultation.
Community Support
Keep SMAshing your limits with these helpful resources, which are designed to support individuals living with SMA and their support systems.
Cure SMA
Cure SMA is dedicated to driving research for treatments and a cure for SMA, and to supporting and empowering everyone impacted by SMA today.
Muscular Dystrophy Association
MDA provides educational resources and support for people living with SMA, their caregivers, and their communities.
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